Florida’s Rare Disease Advisory Council was created adjunct to the Department of Health for the purpose of providing recommendations on ways to improve health outcomes for Florida residents suffering from rare diseases.
House Bill 1373/Senate Bill 272 was presented to Governor Ron DeSantis as a council that will provide a voice to the estimated 1-in-10 individuals living with a rare disease in Florida. This bill was passed on April 27, 2021 and went into effect July 1, 2021. Dr. Divya Patel was given the honor of being appointed as a member of the Rare Disease Advisory Council.
“The Florida Rare Disease Advisory Council will give rare disease patients a unified voice
in the state government by providing them with a forum to make recommendations to elected
officials and other state leaders about pressing health care issues. From providing information
on the provider-patient relationship to identifying best practices, the council will coordinate
with legislators and other government leaders to improve public policy for the state’s rare
disease community.”
